Little John's appointment went well.  He is scheduled for an appointment in SLC on Wednesday morning.  Little John is doing really well.  He is happy and gaining weight. 

Thank you for the best wishes and prayers.

Happy One Month Birthday to Little John

Happy One Month Birthday to Little John!!!!

Little John is doing well.  He eats and sleeps and poops.  Just what a baby should be doing.  Hooray!!!! 

Little John goes in this evening for a checkup.  We will determine if he is gaining enough weight and eating enough.  

I will post more after his appointment. 

Thanks for the thoughts and prayers. 

HE'S HOME

Little John is home as of 6:19pm MT tonight.  He is doing well. 

HE'S COMING HOME TODAY!!!

LITTLE JOHN IS COMING HOME!!!!! 

We are awaiting the final discharge papers to be sent out but we are leaving today.  

Little John will be in Pocatello, Idaho this afternoon.   Little John will not have any tubes or oxygen when he leaves. 

Thanks again for the prayers and best wishes.

Not coming home yet :(

Little John is not going to be coming home today.  The doctors don't feel that he has gained enough weight yet.  Even though he currently weighs 9 lbs.  

So Little John will be alternately feed on breast milk and bottle feed fortified formula.  We are hopeful that they will be more comfortable sending him home tomorrow.  

Thanks again for the best wishes and the prayers. 

Little John is doing really well.  Doctors are going to allow Marlo to actually try to breast feed Little John today hopefully.  Marlo has been getting acquainted w/ waking up to Little John's cries at night.   Right now John is only on his feeding tube and preventative oxygen just to make sure that his heart is working well. 

Hopefully Little John will be home tomorrow afternoon.  

Thanks again for all the best wishes and prayers.  Also thank you for all the people who have made the trip to visit.

Check back later for updates on Little John's progress.

Little John is now getting 3ml/hr of breast milk.  He is breathing really well and over all well.   Little John is getting well adjusted to being held and snuggled a lot. 

2:42pm-Update: Little John has been moved to the 3rd floor to a treatment room to adjust to being off all the machines.  If he adjusts well then he will be in his own room by tonight. They upped his milk to 5ml/hr and he is really doing well. As soon as his bag of lipids runs out they will remove his lipids tube. 

He may be released the end of this week if things keep progressing well.  

Update 10/08/08

Little John is doing much much better. 

They have taken out his breathing tube and he no longer has any fluid in his lungs from the surgery.  

He does have a feeding tube in and is receiving breast milk now.  They are looking to release him first thing next week.  Check back for updates.

Surgery

Little John is currently in surgery as of 9am.  Check back for further updates on his condition.

Thanks for the prayers.

Little John is out of surgery.  His surgery was postponed until 12ish.  It was a 4 hours surgery but all is good now.  He is doing better.  They put a shunt into his right atrium directly to the lungs.  

:)

Thanks again for the prayers and well wishes.

Looking forward

Little John is going into surgery tomorrow and if all goes well, then he may be released to go home by this weekend of the first of next week.  

Please pray for Little John during this time of need for his surgery.

The address to Primary Children's Medical Center is 

100 North Mario Capacchi Drive, Salt Lake City, Utah 84113

Phone: 801-662-1000

For a map that you can print out go to 

http://intermountainhealthcare.org/xp/public/documents/pcmc/map.pdf

Little John is in the Pediatric Intensive Care Unit or PICU (pronounced pick you).  I hope this helps all of you that are wanting to go down to visit Little John, Marlo & Tony.  

Little John Resting in his hospital bed in Primary Children's Medical Center (PCMC) in Salt Lake City, UT

Photo of Little John w/ his gifts-Blue dog on right-gift from Aunt Mandy & Holly, long blue bear-gift from biker club BOCA, Eagle-gift from the Bingo club at the hospital.

Aunt Holly holding Little John's hand down so we could see is poor bruised little hand :(

Aunt Mandy kissing Little John before leaving PCMC for awhile.

Little John's bed at PCMC.

Another photo of John's bed at PCMC

Marlo (Mom) looking stunning 2 days after giving birth

Tony (Dad) standing next to car in the parking lot. 

Aunt Holly repacking the trunk

Doctor listening to Little John's heart at PCMC

Little John holding his binky in!

Marlo chilling while Aunt Holly & Uncle Tony smoke at the smokers patio.

Tony smoking at the Smoking Patio at PCMC

Tony, Aunt Holly and Marlo taking a walk thru the garden at PCMC

Butterfly Angel in Garden at PCMC

Marlo holding Little John at PCMC.

Aunt Mandy holding Little John at PRMC

Aunt Holly, Tony & Marlo with Nurse Jamie the first night of John's life at PCMC.

Marlo looking on to Little John in his bed at PCMC.

Little John in his bed at PCMC

Marlo in her bed at PRMC in Pocatello

Aunt Mandy holding Little John at PRMC.

Aunt Mandy holding Little John while Cousin Madison (Holly's daughter) snuggles in.

Little John looking alert at PRMC.

Little John being cranky at PRMC

Tony holding Little John a PRMC.  They both are pulling the same face.

Aunt Holly holding Little John while he looks around at PRMC

Aunt Mandy kissing Little John at PRMC-notice that he is getting darker through the photos at PRMC

Little John getting his bum changed by Nicole at PRMC.

Little John says "WRAP ME UP NOW!!!!"

Aunt Mandy holding Little John again at PRMC.  Aunt Mandy didn't want to share!!

Cousin Madison (Holly's daughter) holding Little John at PRMC

Marlo sitting up at PRMC

Aunt Holly making Little John look totally cool at PRMC!!!

Madison begging mom (Holly) to hold Little John at PRMC.

Only picture we could get of Little John sticking out his tongue.  Little John loved sticking out his tongue while at PRMC.

Little John looking all snuggly in Me-Ma Pam's arms at PRMC.

Little John looking all relaxed in Me-Ma Pam's arms at PRMC.

Me-Ma Pam (Tony's mom) holding Little John at PRMC.

Tony fixing Little John's hat while Nicole holds him.

Cousin Madison lovingly holding Little John at PRMC.

We hope you all enjoyed the pictures of Little John.  If you have any pictures you would like to share please email them to littlejohn092208@gmail.com.  Thank you!

10/4/2008

Hey Everyone, 

After the tests that were run it turned out that Little John did have small infection.  He is on antibiotics to get rid of it. 

Yesterday Little John underwent Angioplasty.  Little John had a breathing tube inserted for the surgery as well.  They were concerned that he had a blockage in his heart but all went well.  They also did another trace test where they send the dyed liquid thru to see the path of blood flow through his heart.  All went well. 

Little John is very feisty.  He is trying to remove his own breathing tube but is being stopped by the nurses and family. :)  He will have his breathing tube removed later today. 

His shunt surgery was originally scheduled for Tuesday 10/7/08 however, since Little John is doing so well [He's our little fighter :)], they have moved his surgery up to Monday 10/6/08.  They have removed him from the heart transplant list for the time being.  The surgery for the shunt is only temporary and we are hopeful that we will have Little John ready for a transplant in a few months.

Thank you all for your thoughts and prayers.